
III. Moral Implications of Forced Life Support
Now that we have examined and rejected the possibilities that Terri Schiavo was murdered or committed an immoral act of suicide, we are left with the idea that her death by removal of life support was natural and morally acceptable. Her case admittedly falls in somewhat of a gray area created by the inevitable advancement of medical science. But it seems clear that whether or not she really told her husband she would prefer no life support, as long as she didn’t specifically leave instructions asking to be kept alive as long as possible with a feeding tube, it was a legitimate decision to remove it after 15 years of fruitless medical care. In a case where life had permanently lost its ability to bear fruit, Christians can take comfort in their belief in the afterlife, knowing that “killing” Mrs. Schiavo or “letting her die” was in fact liberating her from a non-functional prison of flesh and enabling her to take her place in heaven. We should therefore turn our attention to the question of whether keeping someone like Terri Schiavo alive for years in a persistent vegetative state could actually be a violation of Christian morality.
The Golden Rule
The first consideration of this question must be the Golden Rule. Jesus taught, “in everything, do to others what you would have them do to you, for this sums up the Law and the Prophets.” (Matt. 7:12). In other words, the highest moral prerogative, beyond any specific law or prophetic exhortation in the Bible, is that we are to treat other people as we would wish to be treated. Furthermore, Jesus said, “A new command I give you: Love one another. As I have loved you, so you must love one another.” (John 13:34). And Paul reiterates both of these concepts, saying, “whatever other commandments there may be, are summed up in this one rule: Love your neighbor as yourself.” (Rom. 13:9).
Very few people would want to be kept alive for decades in a state of extreme brain damage - unable to think, move, or communicate - and with no hope of recovery. In fact, polls taken during the Terri Schiavo controversy showed that well over three quarters of Americans would have wanted the feeding tube to be removed if they were in Mrs. Schiavo’s condition. Some polls showed the figure over 90%. In light of this fact, the Bible’s teachings on loving others and treating them as we would want to be treated are unequivocally on the side of removing the tube from Mrs. Schiavo’s stomach - a tube that was an unkind imposition according to most people’s preferences. Conservatives have argued that when in doubt about a person’s wishes, society must always err on the side of life. Not so, according to Biblical Christian morality. The highest moral commandment is the Golden Rule, and this rule when applied to the Schiavo case would argue strongly in favor of allowing her to die and return to God rather than continuing to keep her technically alive in a horribly diminished state of existence. If Christians truly wish to uphold the supreme value of love for others and treating them as we would wish to be treated, the clear moral obligation would be to err on the side of what the vast majority of people regard as a loving act they would themselves desire: removing life support when it has proved to be fruitless. Only if there is a preponderance of evidence that someone like Mrs. Schiavo wanted what most people do not want, should the excessive life support continue to be provided.
Not only is the default mode, according to Biblical moral teachings, to treat people the way most of us would wish to be treated - which in the Schiavo case meant allowing death - but specifically, it was known that Terri Schiavo had a personality that would have been deeply hurt by what was done to her in artificially prolonging her existence. We know that Terri Schiavo was shy, probably suffered from bulimia (which led to the heart failure that damaged her brain), and definitely did not like too much attention and focus on her physical body. She almost certainly would not have wanted the whole world watching her on television reduced to a vegetative state, a caricature bearing little resemblance to her real self, a political football to be kicked around by ideological combatants. She would have been terribly embarrassed that commentators were openly discussing her grossly reduced mental state, her bladder and bowel incontinence, the fact that she could no longer have gynecological examinations because her muscles were too spastic to pry her legs open, and all other manner of intimate personal details. All of this was the direct result of her parents’ relentless effort to keep her connected to a feeding tube because of their wishes, not hers, using political and religious activist groups, websites and print advertisements devoted to their cause, endless legal maneuvering and court appeals, and encouraging the unprecedented involvement of politicians going all the way up to the Congress and President of the United States. Did her parents and their allies stop to think about how this poor woman they loved so much would be remembered after their campaign to preserve her in the flesh? Did they even consider that perhaps, just perhaps, this was not what she would have wanted, and therefore it would be morally wrong according to the teachings of Jesus to turn their beloved Terri into the equivalent of a wax museum piece for the whole world to gawk at?
We cannot judge the motivations of anyone’s heart, and we do not know what was going through the minds of Terri’s family, the Schindlers. But we can be sure they were misguided, and unduly influenced by fanatical pro-life activists who frequently spoke on camera representing the cause to keep Mrs. Schiavo alive, shouting that “an innocent disabled woman” was being “murdered” and “starved to death” in a “barbaric fashion” like what happened in “Nazi Germany” and the “crucifixion of Jesus Christ,” in a way that “you couldn’t even do to a dog without going to jail.” These activists seemed to be ignoring the basic facts of the case: that Mrs. Schiavo was not disabled, but totally non-functional and being kept alive through artificial means with no hope of ever again living a meaningful life; that she was dying in a way that happens normally in hospitals and homes across America, every day, without protest; and that hyperbolic, invalid comparisons only made their argument look ridiculous and devoid of substance. What was even more astounding was that these fanatics were being treated by the media as representative of Christianity. Little philosophical analysis of the moral issues of the case from a Biblical perspective was ever offered. Columnists and commentators who did present “the Christian view” mostly parroted the philosophy of Pope John Paul II on end-of-life issues, which is a new development in Christian thought that derives not so much from the Bible as from that greatly influential pope’s personal choice of emphasis. Where was there talk of the true fundamentals of the faith of Jesus Christ: the glorious promise of the afterlife, the Christian responsibility of living and dying in a self-sacrificial way, and the Golden Rule that requires us to treat others the way we would want to be treated? Rarely were these ideas brought up. But they should have been, and they must be in the future.
The Question of Torture
It is easy enough to see that Terri Schiavo probably did not want the glare of the cameras cast on her vegetative body, even if we discount the court testimony of her husband and two others who were willing to say under oath that Mrs. Schiavo had mentioned her desire not to be kept alive artificially. She probably did not want a federal case made out of her feeding tube, nor was it likely that she even wanted it at all, especially after 15 years. But there is an even deeper moral problem we must look into: the question of torture. All along in the Schiavo case, advocates of the feeding tube argued that Mrs. Schiavo might be somewhat more conscious than most neurologists believed. Instead of a “persistent” or “permanent vegetative state,” some neurologists said she might possibly be in what is known as a “minimally conscious state,” which would mean she had some level of awareness of her surroundings. If this were the case, the pro-tube side argued, then she must be kept alive indefinitely because she had some ability to think, and that fact would make it morally wrong to terminate her life. Many people bought this line of reasoning without understanding its real implications. If, in fact, Terri Schiavo had some thinking ability but was unable to move or communicate for 15 years, then her life must have been a living hell, and those who were keeping the feeding tube in her stomach would be guilty of the grave sin of torture - a sin that may actually be worse than murder under such circumstances.
There is such a thing as mercy, and being merciful is endorsed by the Bible. “Blessed are the merciful, for they will be shown mercy.” (Matt. 5:7). “Be merciful, just as your Father is merciful.” (Luke 6:36). Forcing people to stay alive artificially, unnecessarily, in a hellish condition when virtually everyone would prefer death, is torture and demonstrates a lack of mercy and love. Torturing someone for years would be flouting the Golden Rule and Jesus’s commandment that we “love one another.” To do so for an ideological principle of church doctrine would be to put our own imperfect interpretations and ideas above the most important moral teachings of the Gospel - religious hypocrisy of the worst sort! This is the kind of thing Jesus warned the Pharisees so strongly about, that they were focusing on the lesser aspects of the Law while forgetting the spirit.
If we really love someone, would we make them suffer the agonies of living trapped inside a totally non-functional body for decades, conscious but unable even to communicate their needs to us, when they could die and go to heaven if only we have the courage to put aside our culturally-induced qualms and remove artificial life support? If we have the spirit of Christian mercy, we will recognize that to force a person to endure such a prolonged, frustrating, miserable existence through unnecessary medical technology is not only morally unnecessary, but profoundly morally wrong. Such would be the case for Terri Schiavo, if it were true as her parents argued, that she was minimally conscious rather than in a full-blown vegetative state. If the pro-tube argument on this point was correct, then the rest of their argument for keeping her alive falls apart, at least from the standpoint of Biblical Christian morality. Only if she were totally unconscious could there be a reasonable argument made that artificially sustaining her life for decades is, perhaps, a morally acceptable option.
What About Terri Schiavo’s Soul?
But would it really be morally acceptable to keep Terri Schiavo alive, even if she were in a persistent vegetative state as most doctors testified, and with the added condition that she never told anyone she would have wanted to die, as her parents argued? Even under these conditions - the precise combination of conditions that would seem to allow the greatest moral leeway for the possibility of keeping her alive - there are still serious moral problems with the pro-feeding tube position. One of them is another implication of the Golden Rule, this time in a spiritual dimension.
Research into near-death experiences (NDEs) shows that there are altered states of consciousness between life and death, in which a person’s soul detaches from the body and enters another level of reality. For example, a significant percentage of people revived from cardiac arrest or any brief period of being clinically dead report leaving their body and floating above it, sometimes entering a long tunnel at the end of which is a bright light they believe to be God. More detailed near-death experiences also include meeting dead relatives and friends on the other side, and some of the most amazing stories include information that could only have been perceived if the person’s consciousness was truly outside their physical body. The NDE phenomenon, which has been documented and discussed a great deal in recent years by scientists, doctors, and spiritual leaders, confirms what Christianity has always taught about the reality of life after death: that there is a non-physical soul that can exist separate from the body of physical flesh, and there are other dimensions of existence beyond this earthly plane.
From the evidence that has been gathered of NDEs, it appears that long-term coma or other such extremely reduced mental conditions are an undesirable state for the soul to be in. It is like being stuck in limbo, unable to function either on earth or in the spirit world. The soul might be able to see the glories of heaven that await, but is unable to enter this greater realm until someone is kind enough to remove fruitless life support from the vegetative physical body. Some souls might become confused and have difficulty making a smooth transition to the next world when life support is finally discontinued and they are allowed to die. Is being kept in this condition something we would want done to us, from a spiritual perspective? Nobody has ever come back from a persistent vegetative state such as what Terri Schiavo was in, but comas are similar, and people have come back from comas with NDE testimony - most of which indicates a long-lasting coma is not a desirable situation for the soul. If we are to believe such reports, Terri Schiavo was kept for 15 years in limbo, her soul trapped between two worlds. Whether or not it was a particularly unpleasant time for her we cannot know, but we can be sure her soul would have found a much better abode in heaven rather than the spiritual limbo of a persistent vegetative state. During the time her spirit was artificially tethered to the physical body by man-made technology that afforded her no ability to live a real life on earth, she was prevented from being with her Lord Jesus Christ, her loved ones who had already passed on, and doing the wonderful things that people can do when they cross over to the other side of the grave. This spiritual issue was generally left out of discussions of Terri Schiavo, although it should be of central importance to anyone who believes in the Christian promise of the afterlife and the moral virtue of treating others the way we would wish to be treated.
Gross Inequality Ignored
Another issue that was rarely discussed is the problem of limited resources for medical treatment in society, and how these resources should be comparatively allocated according to moral and ethical considerations. Donated organs are limited in supply, and it is generally considered morally responsible for society to decide who should receive a life-saving organ transplant based on qualitative factors, such as the age and health status of the potential recipient. Similarly, money for medical care is also limited. Many Americans have no health insurance, or insurance which does not cover certain types of treatment. Millions of these uninsured and underinsured citizens are children, some of whom suffer greatly - sometimes even die - because they are denied appropriate medical procedures that would be necessary for their well-being. Is it ethical for society to preserve a functionless existence of a woman in a persistent vegetative state for many years, while some children living in the richest country on the planet cannot even receive basic operations that would allow them to live a fruitful, full life? Not to mention the millions of children around the world who are literally starving, do not have clean water to drink and are exposed to deadly diseases because of lack of sanitation and lack of the most rudimentary preventive care.
Medical costs for Terri Schiavo’s nursing care alone, during the 15 years her existence in a physical body was artificially preserved with a feeding tube, approaches one million dollars. Several million dollars more were spent on legal bills for fighting to keep the tube implanted in her stomach, along with funds raised by political and religious activist groups for advertising and lobbying. After Mrs. Schiavo’s feeding tube was removed, her parents appealed the Florida court decision more than a dozen times to various higher courts, including the U.S. Supreme Court twice - and just filing the legal paperwork for each of these last-minute appeals reportedly cost in the neighborhood of one thousand dollars. Legal experts correctly predicted that none of these repeated appeals had any realistic chance of success, and so an amount of money that would have paid for life-saving surgery for an uninsured person in need, was needlessly thrown away. President Bush unnecessarily chose to fly on Air Force One from his ranch in Crawford, Texas, to Washington, D.C., to sign a Congressional bill authorizing these extra legal appeals in federal court that would not normally have been allowed. The cost of the President’s trip to Washington and back to Texas was over $70,000 - using Air Force One is extremely expensive! - for nothing more than to sign the bill into law a few hours sooner than he could have done had he stayed in Texas, to make a statement about how important he believed the Schiavo case to be. For that amount of money spent on a dramatic political appeal to impress the religious right, the lives of several uninsured children could have been saved if it had been donated for medical treatment which their families were unable to afford.
Jesus taught that charity is one of the most important virtues. Helping the poor and disadvantaged is a moral obligation for Christians who are able to do so. For example, Jesus instructed a rich man to give away all his money to the poor if he wanted to be a true Christian (Luke 18:22). There are countless underprivileged people who needed medical care, food and water much more than Terri Schiavo did. Mrs. Schiavo was being kept alive artificially in an unconscious, non-functional condition with no hope of recovery, mainly because her ultra-conservative Catholic parents wished to follow the teachings of Pope John Paul II on the use of feeding tubes. Other people could have really used the resources extravagantly spent on fighting to preserve Mrs. Schiavo’s fruitless existence, which were denied to them because resources are limited. While a woman who should already have been allowed to die of natural causes was being sustained by medical technology that provided her no benefit, millions around the world were crying, “I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink, I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.” (Matt. 25:42-43).
What Was Gained, What Was Lost?
Including medical bills, legal bills, political and media spending, several million dollars were spent keeping Terri Schiavo artificially alive in a persistent vegetative state and fighting to prevent her husband from removing her feeding tube. The total sum of money involved was probably five million, ten million dollars, or even more. What was gained with such a huge expenditure, and what could have been gained instead? One woman was allowed to live either unconscious or minimally conscious in a very unpleasant condition, unable to talk or communicate, get out of bed or move her limbs. She did nothing at all and probably thought nothing at all for seven extra years, because of millions of dollars invested to keep her attached to artificial life support that served no purpose other than to keep her technically alive. After that, she finally was allowed to die the natural death that had been so strenuously prevented. What would have been different if this great sum of money had not been spent and her husband had simply been allowed to remove her feeding tube years earlier, already quite a few years after her brain injury occurred? For Terri Schiavo, nothing would have been lost except seven wasted years of meaningless physical existence during which she could have been enjoying heaven; and for everyone else involved, seven years of grief and emotional turmoil would have been avoided. In other words, nothing was gained from an expenditure of millions of dollars, and the peace of Mrs. Schiavo’s family was lost in the process.
Michael Schiavo and Terri’s family are no longer on speaking terms after having had an excellent relationship in the past. Mr. Schiavo was slandered by fundamentalist religious organizations on the side of the Schindlers along with right-wing political commentators in the news media, despite the fact that during the entire 15 years his wife was on life support, he was vigilant about her care and she never had a bedsore. He even became a registered nurse in order to help take care of her. Michael Schiavo is no saint: Much has been made of the fact that he began seeing another woman and had two children. However, this happened after many years of trying to save his wife from her vegetative condition, and he continued to visit and care for Terri until the very end. Only after all reasonable medical options had been exhausted did he begin fighting for his wife’s right to die with dignity as he believed were her wishes. One of the reasons he refused to get a divorce, as the Schindler family wanted, was precisely because he did not want his wife’s end-of-life wishes to be violated by family members who were driven by a much more ideological religious faith than her own. Unlike her parents, Terri Schiavo was not fundamentalist in her beliefs. Terri’s father, Robert Schindler, was so extreme in his belief in the religious obligation of using life support that he had actually testified in court that he would never consider removing his daughter’s feeding tube under any circumstances, even if all her arms and legs had to be amputated and she were in terrible pain.
Michael Schiavo’s reputation has been tarnished by all sorts of unfounded allegations against his character designed to detract attention from the facts of the case, including the coarsest and most vulgar ad hominem attacks that he had beaten his wife into a vegetative state, that he denied her appropriate care, and that he was only interested in removing her feeding tube to get money from her insurance and a medical malpractice suit. No credible evidence of domestic violence or abuse of any kind was ever produced. In an organized effort to convince the state to take away Mr. Schiavo’s rights as his wife’s legal guardian, 89 complaints of abuse were filed with the Florida Department of Children and Families over a four year period - many of which were based on rumors and innuendo circulating in Internet chat rooms. All were investigated, and all were found to be false. In a public report, the agency wrote, “the spouse has always been courteous and very compassionate toward his wife” and “all her needs being met.” As for the allegation of greed against Mr. Schiavo, the money in question was mostly used up on her treatment, and any that remained he publicly offered to donate to charity. Moreover, he turned down an offer of $10 million and another offer of one million dollars from wealthy conservatives to give custody of his wife to her parents, refusing these extravagant gifts because, as he said over and over again, he believed the right thing to do was to follow his wife’s medical wishes. Regardless of the facts, Mr. Schiavo may never fully regain the good reputation he lost because of repeated, widely broadcast, deliberate acts of slander.
Robert and Mary Schindler spent seven years filled with grief and anger, devoting their lives to preserving Terri’s feeding tube and fighting their son-in-law Michael, instead of accepting the emotional closure that a natural death would bring. A family was torn apart, a man’s name was smeared, and in the end, a whole nation was divided by harsh rhetoric. Money was raised for an intense media campaign from people who would have less to give for genuine charitable purposes as a result, and the coffers of numerous radical organizations were emptied in a quixotic, emotionally fueled bid to prolong the life of one woman in a vegetative state in spite of what the courts ruled were her wishes - a woman who, against her own will, became the symbol of a new ideological movement seeking to redefine the essentials of Christian morality.
As a sad consequence of the Terri Schiavo case, millions of dollars that ideally could have been spent on saving the lives of poor people with a real chance to benefit from medical care they could not afford, instead was wasted. This money could have fed, clothed, sheltered, and educated many hundreds of starving children in a third-world country. Did the Roman Catholic and fundamentalist Christian activists who spent so much and fought so hard to force-feed one nearly brain-dead woman stop to think about what opportunities for Christian charity were squandered, what terrible facts of life in the world were being ignored while they turned the spotlight on Terri Schiavo? The children with their whole lives ahead of them, lacking enough food to live, or the most basic medical services to prevent them from dying of diseases that have been long eradicated from the wealthy West. Refugees in war-torn lands, living in squalor while comfortable Americans have fun shopping at Wal-Mart for consumer products they don’t need - Americans who make impassioned speeches about the supreme moral importance of our “Christian country” keeping a person on artificial life support for many years, while numerous people in less fortunate countries lack the food and water to live at all. Where was the “culture of life” movement for these forgotten people? Was their “sanctity of life” less important than a woman who was already nearly dead anyway, who was being sustained for an unusually long time through artificial means? The religious right decided to gawk at the hopelessly non-functional body of one woman who would have been naturally allowed to die in almost any other country on earth, using her to raise money to promote their own ideology and political agenda, while literally thousands of people in Sudan, Congo, and other troubled nations around the world were allowed to die, though they could have been saved if the funds had been spent on them. These were people who had a chance for a real life, not the life of a vegetable - if only they had been given the most basic financial and medical resources they needed.
So, basically, here is what happened in the Schiavo case: One person lay in bed in a zombie-like state for 15 years, the subject of extraordinary family strife and public debates about how long she should be fed by a tube, fueled by well-organized fundraising campaigns and furious religious finger-wagging by people touting a so-called culture of life, while many starving children whose lives could have been saved were ignored. Is that true Christian morality, or grossly misplaced priorities? As our rancorous American culture war raged under the glare of the cameras and with the hot breath of eager politicians, real people died - unnoticed. What would Terri Schiavo have wanted? As a Christian, would she have wanted her loved ones to fight in courts, in legislatures, and on television, so that millions of dollars were spent on sustaining her inanimate body with a feeding tube that offered no benefit for her health - or, alternatively, would she have preferred that starving children in Africa had been saved, or that the money had been spent on providing life-saving operations for uninsured people in America? I think we all know the answer.